The New York Times had a Special Section on Sunday May 1, 2016 titled “Fraying At The Edges” by N.R. Kleinfield. The article followed Geri Taylor from the early stages of her disease. Ms. Taylor taught me how we still have a choice in how we live out our lives even in the face of a horrendous disease like Alzheimer’s. The article also introduced me to the NY Chapter of the Alzheimer’s Association called Caringkind, a wonderful organization that I will recommend to many clients.
Mr. Kleinfield writes about the “stigma” associated with Alzheimer’s. This is a disease that makes people feel embarrassed causing them to pretend they are fine when they know they are not. What was refreshing was the focus not on the end of the journey but the beginning and how people can choose how to deal with the disease; to accept it and talk about it, to be active, and to strategize how they can best live with the disease. It truly changed my thinking.